Translating Pulmonary Stenosis into plain English:
Therefore, Pulmonary Stenosis means a narrowing in the opening between the right heart and the lungs.
Pulmonary stenosis is not very common but we still see quite a few patients with this condition. It may occur alone or with other cardiac or genetic conditions.
If the pulmonary valve becomes too narrowed, symptoms can occur.
You should tell your doctor about the following symptoms:
Treatment is needed when the valve becomes too narrow. Sometimes this can happen even though you feel fine, so regular cardiology visits are important.
Most patients are suitable for balloon valvuloplasty, done at the time of a cardiac catheterization study.
If valvuloplasty is not possible, surgery can re-open the pulmonary valve. Sometimes this leaves patients with a leaky valve, which needs to be followed closely in case the heart starts to become too large or the muscle starts to weaken.
You can discuss the type of intervention (valvuloplasty or surgery) with your cardiologist.
This website is designed specifically for young people with congenital heart disease. The goal is to provide information to help people who are getting ready to move (or have recently moved) to adult heart care. We use the term ‘transition’ to describe this process. Family, friends and health care providers may also find this website helpful.
Please be advised this site does not provide medical advice. All of the content on this website is provided for informational purposes only. It is not a substitute for professional medical advice, diagnosis or treatment. If you have or suspect you have a health problem, please consult your family physician. If you have or suspect you are experiencing a health emergency, please promptly visit a Hospital Emergency Department in your area. Reliance on any information provided on or provided in relation to the site is solely at your own risk. Contributors to this website are not responsible, nor liable, for any claim, loss or damage arising from the use of the information contained within this site.
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Anyone can visit this website and most users will create their own User IDs and passwords. However, there are also Adult Congenital Heart Disease (ACHD) and pediatric cardiology programs that have officially joined the iHeartChange team and work together to keep this website going. (You can find a list of the ACHD programs in the ‘Welcome to Adult Care’ section of the website). Some of these programs might choose to assign User IDs so that they can track of and how patients from their own programs visit the website. They might even want to track this for research. If you have been assigned a User ID from a program, that program might ask us to give them information about your answers to the ‘Getting to Know You’ survey, how many times you log into the website and which web pages you visit.
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This will allow you to log in again and keep track of which pages on the website you visit.
If you visit them all, you can earn a transition diploma!
If you register, it also means that you won’t be shown the disclaimer & survey each time that you visit.
However, registration is not required.
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HELPING YOU MAKE THE MOVE TO ADULT CONGENITAL HEART DISEASE CARE
Thanks for checking out our website!
This website is designed mainly for young people with congenital heart disease (CHD). The aim is to help people feel more ready to “transition” from pediatric to adult care. And we know that family, friends and health care providers might also want to check it out!
Since this is your first visit, please read our disclaimer!