In this condition, the aorta (the main artery that carries blood from the heart to the body) is pinched or narrowed. The left pumping chamber (ventricle) has to work harder to pump blood to the body.
Coarctation of the aorta is common and we see lots of people with this condition. It is more common in people with some genetic conditions (like Turner Syndrome).
Many of you would have had your coarctation of the aorta treated when you were young. If it wasn’t treated, or if the narrowing returns, this can cause new symptoms. You should tell your doctor about the following:
Major narrowings of the aorta are usually repaired with surgery. The outlook after surgery is good. But follow-up at an adult CHD centre is still needed because the aorta can narrow again. The aorta can also become too large.
Heart ultrasounds (Echos), CTs and MRIs are used to monitor the size and shape of the aorta
Treatments for coarctation of the aorta can include:
People with coarctation of the aorta are also more likely to have other cardiac conditions that require life long follow up at an adult CHD centre. These conditions include a bicuspid aortic valve and a ventricular septal defect.
This website is designed specifically for young people with congenital heart disease. The goal is to provide information to help people who are getting ready to move (or have recently moved) to adult heart care. We use the term ‘transition’ to describe this process. Family, friends and health care providers may also find this website helpful.
Please be advised this site does not provide medical advice. All of the content on this website is provided for informational purposes only. It is not a substitute for professional medical advice, diagnosis or treatment. If you have or suspect you have a health problem, please consult your family physician. If you have or suspect you are experiencing a health emergency, please promptly visit a Hospital Emergency Department in your area. Reliance on any information provided on or provided in relation to the site is solely at your own risk. Contributors to this website are not responsible, nor liable, for any claim, loss or damage arising from the use of the information contained within this site.
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Anyone can visit this website and most users will create their own User IDs and passwords. However, there are also Adult Congenital Heart Disease (ACHD) and pediatric cardiology programs that have officially joined the iHeartChange team and work together to keep this website going. (You can find a list of the ACHD programs in the ‘Welcome to Adult Care’ section of the website). Some of these programs might choose to assign User IDs so that they can track of and how patients from their own programs visit the website. They might even want to track this for research. If you have been assigned a User ID from a program, that program might ask us to give them information about your answers to the ‘Getting to Know You’ survey, how many times you log into the website and which web pages you visit.
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If you visit them all, you can earn a transition diploma!
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HELPING YOU MAKE THE MOVE TO ADULT CONGENITAL HEART DISEASE CARE
Thanks for checking out our website!
This website is designed mainly for young people with congenital heart disease (CHD). The aim is to help people feel more ready to “transition” from pediatric to adult care. And we know that family, friends and health care providers might also want to check it out!
Since this is your first visit, please read our disclaimer!